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Article
Publication date: 1 September 2000

Daniela Luzi

This paper outlines the principal stages in the development of grey literature (GL), from its first appearance in the post‐war period to its evolution into electronic GL. To this…

6312

Abstract

This paper outlines the principal stages in the development of grey literature (GL), from its first appearance in the post‐war period to its evolution into electronic GL. To this end, the study analyses some of the most important studies and conferences organised up to the 1990s. It also examines the first bibliographies and databases, which transformed the way in which GL was collected and distributed. The second part of the paper briefly outlines the main subjects addressed at international GL conferences, identifying both elements of continuity with earlier work and new developments.

Details

International Journal on Grey Literature, vol. 1 no. 3
Type: Research Article
ISSN: 1466-6189

Keywords

Open Access
Book part
Publication date: 6 May 2019

Maria Brenner, Miriam O’Shea, Anne Clancy, Stine Lundstroem Kamionka, Philip Larkin, Sapfo Lignou, Daniela Luzi, Elena Montañana Olaso, Manna Alma, Fabrizio Pecoraro, Rose Satherley, Oscar Tamburis, Keishia Taylor, Austin Warters, Ingrid Wolfe, Jay Berry, Colman Noctor and Carol Hilliard

Improvements in neonatal and paediatric care mean that many children with complex care needs (CCNs) now survive into adulthood. This cohort of children places great challenges on…

Abstract

Improvements in neonatal and paediatric care mean that many children with complex care needs (CCNs) now survive into adulthood. This cohort of children places great challenges on health and social care delivery in the community: they require dynamic and responsive health and social care over a long period of time; they require organisational and delivery coordination functions; and health issues such as minor illnesses, normally presented to primary care, must be addressed in the context of the complex health issues. Their clinical presentation may challenge local care management. The project explored the interface between primary care and specialised health services and found that it is not easily navigated by children with CCNs and their families across the European Union and the European Economic Area countries. We described the referral-discharge interface, the management of a child with CCNs at the acute–community interface, social care, nursing preparedness for practice and the experiences of the child and family in all Models of Child Health Appraised countries. We investigated data integration and the presence of validated standards of care, including governance and co-creation of care. A separate enquiry was conducted into how care is accessed for children with enduring mental health disorders. This included the level of parental involvement and the presence of multidisciplinary teams in their care. For all children with CCNs, we found wide variation in access to, and governance of, care. Effective communication between the child, family and health services remains challenging, often with fragmentation of care delivery across the health and social care sector and limited service availability.

Details

Issues and Opportunities in Primary Health Care for Children in Europe
Type: Book
ISBN: 978-1-78973-354-9

Keywords

Article
Publication date: 1 June 2000

Adriana Valente and Daniela Luzi

This paper explores how and to what extent the appearance and wide use of Information and Communication Technologies (ICTs) may enhance scientific communication and knowledge. The…

2167

Abstract

This paper explores how and to what extent the appearance and wide use of Information and Communication Technologies (ICTs) may enhance scientific communication and knowledge. The first part analyses the general boundaries of scientific communication, focusing on the use of email. It summarises and develops the results of relevant international studies and surveys on computer‐mediated communication; it identifies, on the one hand, the principal social settings and contexts in which email is used and, on the other, the characteristic features which determine specific communication models. The analysis provides evidence of the various factors which determine the dynamics of electronic communication and which, more specifically, define the difference between business and scientific communication. The second part of the paper explores the close relationship between communication and knowledge in the scientific sector and the role played by ICTs. The assumption that ICTs ought to enhance the acquisition, sharing and transmission of scientific knowledge is questioned by the distinction between explicit and tacit knowledge: ICTs ultimately appear to provide a strong drive only to processes of explicit/coded knowledge handling. Nevertheless, exploring the main components of tacit knowledge in depth, and considering recent ICT‐based applications, it is possible to foresee new opportunities for the creation and dissemination of knowledge through networks.

Details

Journal of Documentation, vol. 56 no. 3
Type: Research Article
ISSN: 0022-0418

Keywords

Open Access
Book part
Publication date: 6 May 2019

Abstract

Details

Issues and Opportunities in Primary Health Care for Children in Europe
Type: Book
ISBN: 978-1-78973-354-9

Open Access
Book part
Publication date: 6 May 2019

Ilaria Rocco, Barbara Corso, Daniela Luzi, Fabrizio Pecoraro, Oscar Tamburis, Uy Hoang, Harshana Liyanage, Filipa Ferreira, Simon de Lusignan and Nadia Minicuci

Evaluating primary care for children has not before been undertaken on a national level, and only infrequently on an international level, an adult-focused perspective is the norm…

Abstract

Evaluating primary care for children has not before been undertaken on a national level, and only infrequently on an international level, an adult-focused perspective is the norm. The Models of Child Health Appraised (MOCHA) project explored the evaluation of quality of primary care for children in a nationally comparable way, which recognises the influence of all components of child well-being and well-becoming. Using adult-focused metrics fails to account for children’s physical and psycho-social development at different ages, differences in health and non-health determinants, patterns of disease and risk factors and the stages of the life course. To do this, we attempted to identify comparable measures of child health in the European Union and European Economic Area countries, we aimed to perform a structural equation modelling technique to identify causal effects of certain policies or procedures in children’s primary care and we aimed to identify and interrogate large datasets for key tracer conditions. We found that the creation of comparative data for children and child health services remains a low priority in Europe, and the largely unmet need for indicators covering all the healthcare dimensions hampers development of evidence-based policy. In terms of the MOCHA project objective of appraising models of child primary health care, the results of this specific work show that the means of appraisal of system and service quality are not yet agreed or mature, as well as having inadequate data to fuel them.

Details

Issues and Opportunities in Primary Health Care for Children in Europe
Type: Book
ISBN: 978-1-78973-354-9

Keywords

Article
Publication date: 1 September 1998

Daniela Luzi

E‐print archives are a new model for the diffusion of scientific information which exploits the interactive characteristics of networked communication. The aim of this paper is to…

Abstract

E‐print archives are a new model for the diffusion of scientific information which exploits the interactive characteristics of networked communication. The aim of this paper is to outline current trends in their production and distribution, taking into consideration institutions which provide them and the submission procedures they use. Special attention is attached to differences in the down loading of documents and the updating of archives, as well as the way in which issues such as copyright and peer review are addressed by each archive.

Details

Interlending & Document Supply, vol. 26 no. 3
Type: Research Article
ISSN: 0264-1615

Keywords

Open Access
Book part
Publication date: 6 May 2019

Michael Rigby, Shalmali Deshpande, Daniela Luzi, Fabrizio Pecoraro, Oscar Tamburis, Ilaria Rocco, Barbara Corso, Nadia Minicuci, Harshana Liyanage, Uy Hoang, Filipa Ferreira, Simon de Lusignan, Ekelechi MacPepple and Heather Gage

In order to assess the state of health of Europe’s children, or to appraise the systems and models of healthcare delivery, data about children are essential, with as much…

Abstract

In order to assess the state of health of Europe’s children, or to appraise the systems and models of healthcare delivery, data about children are essential, with as much precision and accuracy as possible by small group characteristic. Unfortunately, the experience of the Models of Child Health Appraised (MOCHA) project and its scientists shows that this ideal is seldom met, and thus the accuracy of appraisal or planning work is compromised. In the project, we explored the data collected on children by a number of databases used in Europe and globally, to find that although the four quinquennial age bands are common, it is impossible to represent children aged 0–17 years as a legally defined group in statistical analysis. Adolescents, in particular, are the most invisible age group despite this being a time of life when they are rapidly changing and facing increasing challenges. In terms of measurement and monitoring, there is little progress from work of nearly two decades ago that recommended an information system, and no focus on the creation of a policy and ethical framework to allow collaborative analysis of the rich anonymised databases that hold real-world people-based data. In respect of data systems and surveillance, nearly all systems in European society pay lip service to the importance of children, but do not accommodate them in a practical and statistical sense.

Details

Issues and Opportunities in Primary Health Care for Children in Europe
Type: Book
ISBN: 978-1-78973-354-9

Keywords

Article
Publication date: 1 January 2006

Julia Gelfand

To share the major presentations of the 7th International Conference and explore more fully the future of grey literature – what is grey today?

613

Abstract

Purpose

To share the major presentations of the 7th International Conference and explore more fully the future of grey literature – what is grey today?

Design/manufacturing/approach

A review of the main topics covered.

Findings

The range of papers was extensive and contained examples of information systems and networks, partnering and OAI, role of repositories, document supply and delivery, curriculum and instructional developments, and relationships with many publishing entities.

Originality/value

Of value to information management professionals.

Details

Library Hi Tech News, vol. 23 no. 1
Type: Research Article
ISSN: 0741-9058

Keywords

Article
Publication date: 1 January 2004

Julia Gelfand

Reports on the International Conference on Grey Literature held in Amsterdam in December 2003. The theme of the conference was "Grey Matters in the World of Networked Information".

405

Abstract

Reports on the International Conference on Grey Literature held in Amsterdam in December 2003. The theme of the conference was "Grey Matters in the World of Networked Information".

Details

Library Hi Tech News, vol. 21 no. 1
Type: Research Article
ISSN: 0741-9058

Keywords

Article
Publication date: 30 January 2007

Julia Gelfand

Purpose–To report on the Eighth International Conference on Grey Literature held 4‐5 December 2006 in New Orleans, Louisiana, USA. Design/methodology/approach–Describes the main…

407

Abstract

Purpose–To report on the Eighth International Conference on Grey Literature held 4‐5 December 2006 in New Orleans, Louisiana, USA. Design/methodology/approach–Describes the main points of the conference. Findings–Conference continues to offer a global platform for discussions about changes in grey literature. Originality/value–New applications are shared, deeper understandings about power of Internet and electronic publishing and collection intensities.

Details

Library Hi Tech News, vol. 24 no. 1
Type: Research Article
ISSN: 0741-9058

Keywords

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